Shannon, Guillain Barre Syndrome and cannabis!!!
Hey dudes!!! ✌ The best part of about this website is finding your community. When we posted about Jen's PNES story another PNES warrior contact us all the from Texas. Meet Shannon!
SG: Shannon Green 45. I am an author of “Chronic Pain Hacker”. I facilitate chronic pain support groups online and locally in Austin, Texas at www.chronicpainhacker.com
A&A: What is your disability?
SG: I have a neuromuscular autoimmune syndrome called “Guillain-Barre” (GBS), fibromyalgia, anxiety, depression, and non-epileptic seizures (PNES).
These conditions cause widespread pain and weakness with severe fatigue. A&A: You brought up a very interesting topic on how pain can cause PNES. I (Alice) also have PNES mainly caused by pain and fatigue. When did you first discover cannabis?
SG: I first discovered it about 1.5 years ago as a topical cream from a local massage therapist who suffered from osteoarthritis. A&A: How does it help?
SG: It helps significantly with pain and is the only modality that I have found that improves neuropathic pain of the feet and hands which is very difficult to treat. It also aids in sleep and anxiety reduction. I don’t have to worry about the side effects of drowsiness, weight gain, or dizziness. I feel that it’s a safer long term option than prescription medications.
A&A: How you are currently dealing with the pandemic?
SG: Not much has changed for me because my husband and I have worked from home for years. I practice self-care rituals daily such as bubble bath, meditation, art therapy, and taking a walk.
A&A: For people struggling with our diagnosis, what’s something you want them to know?
SG: That you are not alone. Find your tribe of people who get it and provide a positive outlook on life. You can lead a productive and rewarding life in spite of your disability. You have the chance to inspire others with your story.
It's always interesting to meet other people with PNES. Also, we agree. You are NOT alone.
Later, dudes! 🤟🏼